I thought this was an appropriate picture. What I am afraid of is my disease- Cyclical Vomiting Syndrome- in case you don't know what it is- here ya go:
What is cyclic vomiting syndrome (CVS)?
CVS is characterized by episodes or cycles of severe nausea and vomiting that last for hours, or even days, that alternate with intervals with no symptoms.
CVS is characterized by episodes or cycles of severe nausea and vomiting that last for hours, or even days, that alternate with intervals with no symptoms.
Episodes can be so severe that a person has to stay in bed for days, unable to go to school or work. The exact number of people with CVS is unknown, but medical researchers believe more people may have the disorder than commonly thought. Because other more common diseases and disorders also cause cycles of vomiting, many people with CVS are initially misdiagnosed until other disorders can be ruled out. CVS can be disruptive and frightening not just to people who have it but to family members as well.
The Four Phases of CVS
CVS has four phases:
Symptom-free interval phase
This phase is the period between episodes when no symptoms are present.
This phase is the period between episodes when no symptoms are present.
Prodrome phase
This phase signals that an episode of nausea and vomiting is about to begin. Often marked by nausea —with or without abdominal pain—this phase can last from just a few minutes to several hours.
This phase signals that an episode of nausea and vomiting is about to begin. Often marked by nausea —with or without abdominal pain—this phase can last from just a few minutes to several hours.
Vomiting phase
This phase consists of nausea and vomiting; an inability to eat, drink, or take medicines without vomiting; paleness; drowsiness; and exhaustion.
This phase consists of nausea and vomiting; an inability to eat, drink, or take medicines without vomiting; paleness; drowsiness; and exhaustion.
Recovery phase
This phase begins when the nausea and vomiting stop. Healthy color, appetite, and energy return.
This phase begins when the nausea and vomiting stop. Healthy color, appetite, and energy return.
That is what I fear the most- when I know an episode is coming on-I know I will be in bed again for days. I start to panic because there is nothing can do to stop it- I know I will end up in the ER needing fluids, and pain and nausea medication, where people will watch me puke- that is so embarrassing.
I know the kids will have to know their Mom is sick, that Jen will freak out and worry. I fear this disease more than death. More than anything. I hate it.
What a horrible disease. I can't even imagine the inconvenience, pain and feeling of helplessness you must go through every time you have an episode. I will say prayers for you. You have incredible strength!
ReplyDeleteThank you for opening my eyes to this disease. I've never heard of it before. I hope your episodes are few and far between and that sometime soon there is a cure or treatment that will keep them from coming at all.
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